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From the periphery : real-life stories of disability

2020

Format:	Book
Author:	Justesen, Pia.
Title:	From the periphery : real-life stories of disability / Pia Justesen.
Publisher, Date:	Chicago : Lawrence Hill Books, [2020]
Description:	276 pages : illustrations ; 23 cm
Summary:	"FROM THE PERIPHERY consists of more than thirty first-person narratives by activists and everyday people who describe what it's like to be treated differently by society because of their disabilities"-- Provided by publisher.
Subjects:	People with disabilities -- Case studies. Discrimination against people with disabilities -- Case studies.
Notes:	Includes bibliographical references and index.
ISBN:	9781641601580 (pbk.)
System Availability:	1
Current Holds:	0
# Local items:	1
Control Number:	1759595
Call Number:	305.9/08
Course Reserves:	0
# Local items in:	1
# System items in:	1

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Summary

From the Periphery consists of nearly forty first-person narratives from activists and everyday people who describe what it's like to be treated differently by society because of their disabilities. Their stories are raw and painful but also surprisingly funny and deeply moving--describing anger, independence, bigotry, solidarity, and love, in the family, at school, and in the workplace. Inspired by the oral historians Studs Terkel and Svetlana Alexievich, From the Periphery will become a classic oral history collection that increases the understanding of the lived experiences of people with disabilities, their responses to oppression, and the strategies they use to fight for empowerment.

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Booklist Review

In this series of brief chapters, human-rights lawyer Justesen summarizes her conversations with over 30 adults with disabilities. The interviews center around the premise of disability as a social construct, addressing instances of prejudice, discrimination, and dismissal. Although the types and levels of disability vary (physical, visual, auditory, cognitive, mental), many sentiments are expressed over and over: public treatment that fed into negative self-image and feelings of worthlessness; anger, rage, and denial; feelings of invisibility; and isolation. Additionally almost all of the participants bring up instances where their civil rights have been ignored. These miscarriages of justice occur in educational settings, housing, and the workplace, leading many to seek support groups and become involved in disability-rights activism. Not all the stories have happy endings. However, several interviewees mention finding self-acceptance, coming to terms with insensitive strangers and ignorant officials, developing coping mechanisms, and learning how to deflect condescending pity or being held up as an inspirational icon. These first-person narratives are eye-opening, honest, and compelling.--Kathleen McBroom Copyright 2010 Booklist

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Table of Contents

	Foreword Senator Tom Harkin	p. xi
	Prologue	p. xv
1	I Got Angry	p. 1
	I Felt This Rage Marca Bristo	p. 3
	I Just Never Could Get Angry Enough Kiel and Renee and Ken Moses	p. 12
	The Best Way to Cope Is by Being Angry Jacky Dorantes	p. 32
	I'm Asked to Fight All the Time Julie Schrager	p. 39
2	What I Mean When I Talk About Disability	p. 45
	We Are Less James Charlton	p. 48
	An Aspect of Human Variation Heather Gabel	p. 54
3	No One Sees Me	p. 61
	You're Literally Not Seen Susan Nussbaum	p. 63
	I Feel the Discrimination Like the Death by a Thousand Paper Cuts Alissa Chung	p. 68
	I Felt Like Deaf People Were Invisible Rachel Arfa	p. 74
4	Embracing Disability	p. 79
	I Know People Now Who See Me Timotheus Gordon	p. 81
	A Part of the World That We Don't Talk About Matt Perry	p. 86
	A Liberation to Become Truly Blind Pam Berman	p. 94
	Disability as a Transforming Experience Rene David Luna	p. 99
5	Alone at School	p. 105
	You're Still a Person with a Disability at the End of the Day Curtis Harris	p. 107
	You Stupid Nigger Chink. Can I Catch What You Have? Andre	p. 112
	Don't Let Anybody Sit Alone at Lunch! Jennifer Wheeler	p. 119
	You Know Absolutely Nothing About Me Erick Allen	p. 126
6	To Be Loved	p. 131
	Shutting People Out Is What I've Done Candace Coleman	p. 133
	Nobody Wants Me Man Called J	p. 141
	To Consider Me, Even Though I Couldn't See Sharon	p. 147
	I Felt for a Very Long Time 1 Was a Monster Rahnee Patrick	p. 152
7	There's So Much Dignity in Work	p. 157
	Society Cannot Get Over the Fact That I Have a Disability! Susan Aarup	p. 159
	I Don't Believe in Giving Up Allen West	p. 164
	Somebody's Gonna Take One Look at My White Cane: Anonymous Woman	p. 169
	I Just Want Justice Mary Rosenberg	p. 174
8	Out in Public	p. 181
	I Wouldn't Tell Anyone Fred Friedman	p. 183
	It's Almost Like I'm Guilty Until Proven Innocent Judy	p. 190
	You Don't Have Dwarf Phobia. You're Just a Bigot! Gary Arnold	p. 195
9	Independence	p. 203
	Just Like a Person Michael Grice	p. 206
	I Want to Spread My Wings Too Michelle Garcia	p. 210
	But We Do Not Like Pity! Edwin and Luisa and Alfredo and Alberto and Jose and Michelle	p. 219
10	I Am Not Inspiring	p. 223
	I'm Going to Give Them a Show Amber Smock	p. 225
	I'm Just a Regular Person Doing Regular Things Keianna Parker	p. 231
	His Existence Is Not Inspirational Aaron and Birdy Holzmueller	p. 237
11	If Nobody Thinks I'm Worthy, Maybe I'm Not	p. 245
	You're Not Important Enough Mike Ervin	p. 247
	I'm Free from That Now Kathiana	p. 253
	Epilogue	p. 263
	Acknowledgments	p. 269
	Index	p. 271

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